Update - I got ahold of that link I showed you. It’s been four days. I have called (IP Relay for the Deaf) multiple places. Been so frustrating. I wanted a bed like tomorrow Monday. Everything’s been a dead end. Back to the original place I linked - he was very rude (just not very compassionate at all).
So in frustration I emailed my social worker on Friday evening. She said she would start the process of trying - be the word trying to get things covered thru a charity.
My OT - right from the start said that the hospital bed wouldn’t be covered because I am not end of life (government). I explained the concerns I had. Well my doctor wrote a prescription with an affirmative note explaining how imperative this was.
My PSW and the PSW company coordinator
also backed my social worker’s and my doctor’s prescription to the OT.
OT finally budged with the hospital bed referral, she’s helping my social worker with the application to a charity.
So 2 things. Firstly, I spoke to someone and they explained buying a used hospital bed that is not under warranty, not the precise fit for my needs, so many other factors (she explained - would not be smart). I could end up in a worse situation. For explain if the motor goes, or anything it costs more money to fix and have soneone come out to take it and then deliver (set it up again).
Secondly, the OT now will start the process of sitting down and figuring out what the best options, type of bed, kind of mattress etc would be suitable for my needs and enchance my quality of life… the appointment supposely is in 3 weeks.
I had an emergency meeting on Friday with my social worker. Now she said should I get awarded “funding” it will be the cheapest option - which means upgrades to add ons won’t be covered. It will be very much the cheapest basic according to what the OT writes down, the quotes highest to lowest she hands in and from what vendors.
I am not happy about waiting. As the bed sores are painful. I even discussed renting but after I had totalled it up it would be cheaper to buy (my social worker agreed when we discussed it). Rental is for someone who isn’t going to be alive long so the purchase is unnecessary.
Everything in my body is wanting a bed like now. When doors have been closed, I haven’t been successful with the various places I have called - I have just surrendered it to God knowing all I can do right now is wait and prepare as frustrating as it is for my flesh.
I know everyone suggested second hand hospital bed but the mattress that I am going to need is close to 2,500 alone (air mattress with ROHO cushion with a machine because I am thin/underweigh) I will be prone to battling bed sores - as my PSW was explaining.
Now I wait. Last thing I want to do is to make a mess. Purchase something not fit, not suitable and doesn’t help. My OT will determine what exactly I would need for what the conditions I have. I do know things whatever upgrades needed will not be covered, add ons etc (my social worker already made me aware).
Now - this isn’t definite. The paperwork - could be denied. Approval isn’t based on whether the social worker, PSW, doctor or the OT submits it. The organizationv (charity) very well may deny and then well - it’s not covered. But atleast I have what bed that I specifically need and go from there. I wish it was more simpler. It is not the government application it’s a charity.
Until then. Not sure what else to do but to do the only thing I know for sure - is to trust God.